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About Us

Spina Bifida & Hydrocephalus

Awareness Month

June is SB&H Awareness month across Canada. The SBHASA will be promoting information on Spina Bifida and Hydrocephalus, SBHASA programs, with our annual Hope Classic event held the first Saturday of every June.  We welcome anyone looking for volunteer opportunities a/o help in fundraising and raising public awareness.

Our Mission

To improve the quality of life of all individuals with spina bifida and / or hydrocephalus and their families through awareness, education and research.

Our Symbol - The "Daisy"

  • The heart of the flower represents the brain, which in the case of persons living with spina bifida, is often affected by hydrocephalus

  • The daisy’s petals are cloven, thereby representing the various lesions caused by spina bifida and hydrocephalus

  • The daisy’s leaf and stem are irregular and depict the unusual form of the spinal cord and backbone of a person born with spina bifida

  • The beauty of the flower reflects the beauty of people with spina bifida and hydrocephalus who, in spite of their challenges, live happy and productive lives.

Board Meetings

Board meetings are held bi-monthly on Mondays at 7pm at the Alberta Children's Hospital 4th floor, room 13.  Specific dates are communicated to all members via email.