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About SB & H

Spina Bifida

Spina Bifida is a type of birth defect called a neural tube defect. It occurs when the bones of the spine (vertebrae) don't form properly around part of the baby's spinal cord. Spina Bifida can be mild or severe. The mild form is the most common. It usually doesn't cause problems or need treatment.

There is no cure for Spina Bifida or hydrocephalus. Treatment often involves surgery, therapy and can also include medication. Many people with Spina Bifida benefit from mobility supports such as braces, crutches, or wheelchairs. Almost all will have some sort of bladder or bowel dysfunction.

Hydrocephalus

Hydrocephalus, also called Water on the Brain is a condition in which there is an abnormal build up of CSF (cerebrospinal fluid) in the cavities (ventricles) of the brain.  The buildup is often caused by an obstruction which prevents proper fluid drainage.   It may be present at birth of may develop later in life. These may include impaired vision, hearing, mobility and coordination along with seizures, headaches, hormonal imbalance, and learning disabilities.

Hydrocephalus can be surgically managed with a shunt (tube) to redirect the CSF into the abdomen where the fluid is released.  Most people with hydrocephalus will have some form of learning disabilities.

Latex Allergy Alert

Studies have shown that up to 73% of individuals with spina bifida and/or hydrocephalus are allergic to natural latex, the sap of the rubber tree. Sensitivity to latex can happen at any time.