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There is great diversity among the population of people
who have spina bifida. Depending on the level of the spina bifida lesion, there may
be paralysis and loss of sensation of some degree below the defect. Some children will be
ambulatory, a few will walk without assistance, and others will require bracing and a walker or
crutches.
Some children who walk when they are younger will find that using a
wheelchair for most activities makes sense as they grow so they can keep up with
their friends. Some children with spina bifida will first start using a
wheelchair for mobility when they are a just few years old. Some children will
find that a manual chair fits their needs. Other children who use a manual chair
when they are quite young may find that a power wheelchair gives them more
independence of mobility when they get a little older.
Most children with spina bifida who use a wheelchair can learn to
transfer themselves (with or without assistance) from the wheelchair to
floor and back, wheelchair to other seats and back, etc. This should be
encouraged as much as possible. Advice on this should be sought from your
physical or occupational therapist.
It is important that small children who use a wheelchair do not spend
all of their time in the wheelchair when other children are playing or
working on the floor. Being down on the floor encourages social inclusion,
as well as involvement in the same activities as other children.
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