Support Groups

Parent Support

We are here to assist families by providing on-going emotional support, practical information and education to families that are expecting or raising a child with spina bifida. We as parents can utilise our experiences to benefit other families and we can also individually learn how we can better assist our children in their daily lives and prepare them for the future.

Please contact our office if you would like to be put in touch with other individuals living with spina bifida. Parents, grandparents and caregivers of children (of any age) are welcome to join. In addition, if you are an adult that is living with spina bifida you are also welcome, as there is much we can learn from you!

Online Support Groups

The SBHAC Online Support Network has message boards for kids, teens, and adults with spina bifida and / or hydrocephalus, as well as their friends, family, and teachers. Registration is free. There are also several email based support groups available through Yahoo: SBParents, SBMoms-N-Dads, SBFriends-and-Family, SBTeens, and more. You can see what these groups are about and sign up by visiting the Yahoo Groups site.

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