SBHASA members can request a copy of Bitsy & Bumbsy Bottom: stop those pressure sores!!! by contacting our office. Written by Jenny Aikenhead and Stephanie Birkett from the ACH SB clinic, this illustrated story tells kids how to look after their skin and avoid pressure sores.
Coming soon! Bitsy & Bumbsy Bottom: stop those pressure sores!!! will be available online to download in an interactive PowerPoint format. Please check back in the fall 2007 to download your free copy.
The following informational materials are available to borrow from SBHASA:
- Sexuality Issues, by Steven Sloan (2003 SBAA conference lecture on cassette)
- Facilitating Social Skills Development, by James Loomis (2003 SBAA conference lecture on cassette)
- SPINAbilities, by Marlene Lutkenhoff (book)
- When your child has Learning Differences, by Gary Fisher and Rhoda Cummings (book)
- Paralysis Resource Guide, by Christopher & Dana Reeve Paralysis Resource Center
Please contact Stephanie Birkett at ACH if you would like to borrow these materials.
Recommended Reading:
- Understanding Spina Bifida by the Spina Bifida Team at the Bloorview MacMillan Centre.
This great reference book is available to purchase for $10 through our office. Please contact us for more information, or talk to Stephanie at your next clinic visit.
- Right Under My Nose is an online book created to help children with spina bifida understand their condition, discover new ways to enrich their lives and help their parents and caregivers answer many of the tough questions that arise. With a fully interactive story, activities, tips, and a printable version of the whole book, this site is intended to be educational and fun.
The SBHASA has also donated the following books to the Calgary Public Library:
Title |
Author |
| Books for kids / teens: | |
| Nick Joins In | Lasker, Joe |
| Rolling Along with Goldilocks | Meyers, Cindy |
| Princess Pooh | Muldoon, Kathleen |
| The Hospital Book | Howe, James |
| Easy for You to Say | Kaufman, Miriam |
| What’s Stopping You? | Nagler, Mark |
| SPINAbilities | Lutkenhoff, Marlene |
| How it Feels to Fight for Your Life | Krementz, Jill |
| And How are We Feeling Today | Hammer, Kathryn |
| Medical Information: | |
| Current Concepts in Spina Bifida and Hydrocephalus | Bannister, C. and Tew, B. |
| The Shunt Book | Drake, J. and Sainte-Rose, C. |
| Bowel Continence and Spina Bifida | Leibold, Susan |
| Bowel Management Programs | Accent Guide |
| Hydrocephalus | Toporek, C. and Robinson, K. |
| Protecting Against Latex Allergy | VHS-SBAA |
| Pressure Sores | Accent Guide |
| The Ostomy Book | Mullen, B. and McGinn, K. |
| Parenting and Families: | |
| Parenting Tips from Parents (who happen to have a disability) | Accent Guide |
| Uncommon Fathers | Myers, Donald |
| Caution: Do Not Open Until Puberty | Enright, Rick |
| Children With Spina Bifida | Lutkenhoff, Marlene |
| Brothers, Sisters, and Special Needs | Lobato, Debra |
| Special Siblings | McHugh, Mary |
| Living with a Brother or Sister with Special Needs | Meyer, Donald and Vadasy, P. |
| Nobody’s Perfect | Miller, Nancy |
| Yes You Can | Nagler, Mark |
| Steps to Independence | Baker, B. and Brightman, A. |
| Living with Spina Bifida | Sandler, Adrian |
| Sexual Development: | |
| Sexuality and the Person with Spina Bifida | Sloan, Stephen |
| Reproductive Issues for Persons with Physical Disabilities | Haseltine, Cole and Gray |
| Love: Where to Find It, How to Keep It | Becker, Elle |
| Enabling Romance | Kroll, K. and Klein, E. |
| Education: | |
| Wings to Fly | Bailey, Sally Dorothy |
| Including Students with Physical Disabilities in Regular P.E. | Block, Martin |
| Active Living Through Physical Education | Active Living Alliance |
| Learning a Living | Brown, Dale |
| Job Hunting Tips for the So-Called Disabled | Bolles, Richard |